About Us

I’m a stay at home/ work at home mom. I married my high school sweetheart, and we have been together since we were 16. I live in NC and have 3 children. I have worked with kids, both typical, and special needs in the schools since I was 18. I have been a volunteer and a substitute teacher. When I had my youngest, I decided to stay home to care for, and work with her. Once she started school, I began to focus seriously on my sewing.

I attended college for 3 years, majoring in elementary education and biology. I did not graduate after having my son, but I am very thankful for the things I learned while there. Those 2 subjects that I studied for those 3 years, gave me a solid foundation for caring for my kids. After several classes on human biology, human physiology, and genetics, I better understand their physical disabilities, the how’s and why’s of their conditions. The early education and elementary education classes helped me better know how to teach my kids and help them learn.

My oldest is grown and married. My 2 younger children both have special needs and are the reason I now have this website (as well as my other site Something Sew Special) They both have cerebral palsy, seizures, mental retardation, microcephaly, are nonverbal, and are technically “undiagnosed”. They both carry a mutation on the gene responsible for Rett Syndrome, but it is an “unknown” mutation and the doctors don’t know what it means. They do not present with typical Rett characteristics.

I first started this website just after my son was diagnosed, many, many years ago :-) I began it as a way to cope. I lived and breathed the internet and researching everything to better understand what was happening to us. From there, as I became more comfortable in our new life, it transitioned to wanting to help other families on this same difficult road. So what started out as a website mostly just about my son (before Blogger and such) turned into a bit more of an informational website, and here we are.

Thank you to everyone who has taken the time to read this!